Debra (“we”, “us” or “our”), a registered charity, is committed to respecting your privacy and protecting any personal information we process in relation to individuals in line with our obligations under the General Data Protection Regulation (No. 2016/679) (“GDPR”), the Data Protection Act 2018 and any other laws which apply to us in relation to the processing of personal data (collectively referred to as “Data Protection Laws”). In this Privacy Policy, “controller”, “personal data” and “process” (and its derivatives) have the meanings given to those terms in the Data Protection Laws. References to “we”, “us” or “our” refers to Debra.

The purpose of this privacy policy is to outline how we process personal data, including through use of this site, regardless of how you access or use our site (the “Site”) – whether via personal computers, mobile devices or otherwise.

Our aim is to be transparent about what we do and to make it easy for you to control the use of your data based on your preferences.

The Site is not intended for, directed at, intended for or likely to be accessed by children.

Debra is the national charity established to provide support services to those families living with EB in Ireland and is the controller of personal data processed in connection with its services.

Please also see our Cookie Policy here for further details about the ways in which we collect and use your personal data. Please note that this privacy policy is a dynamic document.

From time to time, we may amend this Privacy Policy.

Any changes to this Privacy Policy will be posted on the Debra website so that you are always aware of how any personal data is processed. If at any time we decide to process personal data in a manner significantly different from that stated in this Privacy Policy, or otherwise disclosed to you at the time it was collected, we will notify you by e-mail.

Download full policy