“When you say you have blisters, people dismiss them. They do not understand how painful the blisters are.” This is what Geraldine told us, and it is why the latest edition of The Butterfly Effect matters so much. Our summer newsletter is out now, and inside every page is proof of what your kindness makes possible.
You will read how a specially structured insole, funded because of you, could soon pump cooling fluid through the shoes of people like Geraldine, easing pain that never really lets up. She dreams of one day walking part of the Camino. Your support is what makes a dream like that feel a little less impossible.
You will also see the difference small things make. A comfy chair. A fan on a hot day. A footstool to rest blistered feet. Simple, and yet for someone living with EB, these are the things that turn an unbearable day into one they can get through.
There is more inside too: how your voice is helping push for fairer disability parking, how Debra travelled to São Paulo to stand with the EB community on a world stage, and how the fight for a national bandage scheme is gathering real momentum. All of it because people like you refused to look away.
Every story in these pages started with someone choosing to give. If it moves you the way it moves us, please consider donating today, so we can keep bringing hope to families living with EB, one gift, one insole, one small comfort at a time.
