- About EB
- EB support
- EB research
- Get involved
- Our campaigns
- Who we are
Debra recently participated in the EB Clinet Conference 2024 in Vienna, an event bringing together leading experts, researchers, healthcare professionals, and patient advocacy groups from around the world. Organised by EB Clinet, the conference focused on the latest breakthroughs in EB care, cutting-edge research, and collaborative strategies aimed at improving the lives of those affected by this rare genetic condition.
The event featured presentations on advancements in wound care, gene therapy, and clinical trials, along with interactive workshops and panel discussions where attendees shared insights and best practices. For Debra, attending this conference was a vital opportunity to engage with the global EB community and ensure that the voices of patients and families were central to the discussions.
Head of Research, Sinéad Hickey said, “Attending the EB Clinet Conference 2024 is essential for Debra as it enables us to connect directly with the global EB community, exchange knowledge, and stay informed on the latest in EB care and EB research. By participating in these vital conversations, we can better support families, advocate for improved care, and help accelerate progress towards innovative treatments.”
The conference not only provided valuable updates on emerging therapies but also reinforced the need for collaboration across the global EB network. By engaging with researchers, clinicians, and other advocacy organisations, we strengthen our ability to deliver enhanced care and support to families living with EB.
“It was important for Debra to attend the EB Clinet Conference 2024 as it provided a unique opportunity to learn from experts, researchers, and families within the EB community. By staying informed on the latest in EB care and EB research, we can strengthen our support for those affected by EB, advocate for better care, and contribute to advancing research that brings us closer to new treatments and improving the quality of life for those impacted by EB.”
The insights gained from the conference will play a key role in shaping Debra’s advocacy and support initiatives, ensuring that those living with EB continue to benefit from the latest developments in care and research.
