Alison is determined to help other people living with butterfly skin in Ireland and beyond

Alison Hyland, who lives with recessive dystrophic EB, is determined to help other people living with butterfly skin in Ireland and beyond. This is why she’s pursuing a career in Genetics/Cell Biology at DCU and working as a Research Assistant with Debra. Her passion to find a cure comes from her personal journey.

“Ultimately the goal is to find a cure, so no one will have to suffer with this condition.”

Debra has invested over €1 million in EB research uncovering crucial knowledge about EB. But our journey doesn’t end here. We’re determined to keep pushing forward, funding research that improves the quality of life of those like Alison.

With your support, we’ll continue to drive and demand EB research in Ireland and beyond.