- About EB
- EB support
- EB research
- Get involved
- Our campaigns
- Who we are
At Debra, we work side-by-side with Trusts and Foundations to identify the areas in which they can make the biggest impact, in line with their own mission and aims.
This funding is essential. It gives us the flexibility to direct funding to where it’s needed most, and adapt our work when needed.
Are you part of a Trust or Foundation that would like to work with us? Complete this form and we will get in touch with you.
We value and support every Trust and Foundation we work with.
To us, a partnership is more than financial support. It’s about having the same values, mission and principles. It’s about shared learning, respect and support.
If you’re a Trust or Foundation working with us, you can expect the following:
We monitor and evaluate all our projects and programmes. This way you’ll know how your funding is making a difference. We’ll also keep you up to date on our latest research and publications.
This might include giving you key messaging and information on EB, quotes for a press release, or social media graphics.
This might include giving you materials to share with your staff on EB Awareness Week, Rare Disease Day or other opportunities.
At these events you’ll learn more about our work and hear from the people we support.
We may invite you to roundtables to shape our work and share insights with others in the sector.
Our services and support are free, confidential, and tailored to your individual needs. From advocating for services to providing financial support. From meeting face-to-face for emotional and practical support in all 32 counties across Ireland to organising events so you can connect and support each other.
No one impacted by EB, should struggle to get the support and services they need. We campaign to change policies that affect people’s lives so no one has to fight alone.
We are the largest funder in Ireland of EB research. We have been responsible, through funding pioneering research and working internationally, for establishing much of what is now known about EB. We won't stop until treatments and cures are found.
