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About EB
What is EB?
Types of EB
EB simplex
Junctional EB
Dystrophic EB
Kindler EB
Information and resources on EB
EB on screen: Stories that help the world understand
EB support
How can we help you?
Financial support
Special circumstances grant
Respite and wellness grants
Hospitalisation grant
Psychological support grant
Visits and support calls
Loss and bereavement support
Peer support and events
Personalised EB booklets for school
Personalised animations for schools
Free emotional toolkit
EB Medical Alert Card
Genetic counselling and assisted fertility
Join the Debra International Youth Council
Register with us
Information and support for healthcare professionals
EB research
What we do in EB research
Projects we support
EB Expert Panel – Public and Patient Involvement
Drug repurposing
What are clinical trials
EB Registry
Campaigns
EB Butterfly Review
Annual pre-budget submissions
Fairer access to disability parking
National bandage scheme
Tackling the cost of disability
Improving services and advocating for change
Rare Disease Day
Access to treatments and medicines
Inside Out
EB Awareness Week
Working in partnership
Get involved
Donate or fundraise
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Take on an active challenge
Gaisce – The President’s Award and EB
Corporate fundraising
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Trusts and Foundations
Join our EB Expert Panel
Upcoming events
Polo by Debra (Sept. 4)
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Who we are
Our vision, mission, and values
What we do
Our strategy for 2025-2028
Governance and management
Annual reports and financial accounts
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Our celebrity supporters
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EB stories
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Events
11 October 2026
Register for the upcoming EB Expert Panel Workshop, October 11, 2026
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21 June 2027
Alpine butterfly trek 2027
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Events archive
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Have an idea for an event? We’d love for you to get involved.
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