Register with us
All our support services are free, confidential, and tailored to your individual needs. Just complete our simple registration process.
We offer various opportunities throughout the year to encourage and harness peer support. EB is a rare disease and can be isolating. Our peer events offer everyone impacted by EB an opportunity to meet others with a similar understanding of EB.
From family days to adult peer support groups, you can come together to share your knowledge of EB, support each other and make new friends.
All our support services are free, confidential, and tailored to your individual needs. Just complete our simple registration process.