Research projects we support - Debra Ireland
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Projects we support

It is our role to increase EB research both in Ireland and across the globe.

We have funded and supported many research initiatives, contributing to a better quality of life for people living with EB.

We work closely alongside researchers, DEBRA International, clinicians and people linked in with us for all our research projects.

Ongoing projects

Prof Dimitrios Zevgolis, University College Dublin (UCD) Epidermolysis bullosa: Development of advanced biomimetic living equivalents (EB-DOABLE)

Prof Wenxin Wang, (UCD) Using non-viral gene editing to treat Recessive Dystrophic EB

Dr Michael Bärtschi and Prof Dominique Bremond-Ginac, Eyeness AG, Switzerland Creating a guideline for clinicians who treat eye symptoms in EB

Prof Desmond Tobin, UCD Using hair follicles to source Collagen 7 to heal wounds in EB

Prof Nicholas Dunne, Dublin City University (DCU) A nanoparticle-loaded hydrogel for Epidermolysis Bullosa (reGENErate)

Prof Wenxin Wang, UCD Wound and pain management using a collagen and painkiller infused dressing

Prof Gareth Inman, CRUK Beatson Institute UK Drug re-purposing for the treatment of RDEB squamous cell carcinoma

Prof Liam Grover, University of Birmingham, UK High-retention, lubricating eye drops to enhance quality of life in EB patients

Dr Matthew Caley, Queen Mary University London, UK Treating JEB With Recombinant Laminin 332

Dr Inês Sequeira, Queen Mary University London, UK Identifying the cellular and molecular mechanisms underlying the oral mucosal scarring and resistance to cancer development in RDEB patients

Dr May El Hachem and Dr Paola De Angelis, Bambino Gesù Children’s Hospital, IRCCS, Rome, Italy Diagnosis and management of oesophageal strictures in EB patient

The James Lind Alliance Steering Group & Synergy Research UK Highlighting the most important questions in relation to EB research

Completed projects

Prof Liam Grover, University of Birmingham, UK A Mouth/Throat spray to alleviate symptoms of RDEB

DDr Gudrun Salamon, Sigmund Freud University Vienna, Austria Burdens and helpful aspects for achieving and maintaining quality of life with epidermolysis bullosa

Dr Yanling Liao, New York Medical College, USA Identifying innate and adaptive immune mechanisms associated with fibrosis in animal models of RDEB

Prof Andrew South, Jefferson Medical College Philadelphia, USA Multimodality targeting of chronic inflammation and fibrosis in epidermolysis bullosa

Dr Darragh Flannery, University of Limerick Calculating the costs of EB depending on severity in the Irish population

Dr Rosemary Gowran, University of Limerick Creating a better support system for Epidermolysis Bullosa Patients: how we involve everyone in making sustainable solutions

Ms Sandra Kearney, MSc The daily challenges and healthcare needs of those impacted by EB

Apply for funding

If you are a researcher and/or medical staff member who currently works with Debra, and you’d like to apply for funding, please complete the form below. If you have not worked with Debra before, then please submit an Expression of Interest instead.

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