We might be a small charity but our mission and our ambitions are colossal.
Debra is here to tell Ireland and the world beyond its borders about EB (epidermolysis bullosa), to compel everyone to care, and to be a positive force for all those living with EB, caring for someone with EB, or who have been bereaved by EB.
People living with EB are missing the essential proteins that bind the skin’s layers together, so any minor friction, movement or trauma causes it to break, tear, and blister.
It is as fragile as a butterfly wing.
That’s why we’re here. To be a positive force for all those living with EB and all whose lives have been impacted by EB.
